Now that Dr. DeMassi has reduced my DEX dose down to 2 mg, once a day, I've revised my drug matrix to reflect the change. Here's the latest (click on image to enlarge).
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Phil Marder's battle with Glioblastoma Multiforme
Hi Phil,
ReplyDeleteI'm glad to hear you've been able to reduce your dose of dex to 2mg/day. As you said, hopefully that will help with the puffiness and weight gain. Sounds like a really nice quaint little place in Rensselaer. I too like those little out of the way places. The little eatery in Fillmore near dad's place is like that. The lady who runs it (Bert & Betty's Kitchen) took it over after her parents who started the restaurant and ran it their whole lives passed away. She moved back to Fillmore to continue in the tradition of her parents after they passed. I firt became acquainted with it when I walked the trail from Greencastle to Fillmore with my friend from Greencastle. It's a 5 mile walk (one-way), so we would go to Bert & Betty's for a cold drink (in summer) or something warm to drink if it was cold outside. Jackie Miller (the owner - same first name as my mom) opens up at 6am and closes at 3pm Monday through Saturday. Then there is all the shopping, cleaning, banking, and getting ready for the next day's business after closing each day. She told me she get's up at 4am and is at the kitchen (right next door) at 5am each day. So, that's six 10 hr days a week on site, with all the other stuff to do afterwards. I truly don't know how on earth she does it, but she always has a smile and clearly loves what she does. Ah! She LOVES what she does - there's the key!
Well, it's alway good to read what you're up to. Sorry you missed the kids for the fantastic food over the weekend, sounded really good! I'm happy to read, each time I check the blog that you're tolerating the treatments well. Praise GOD!! I'll go for now - will look forward to the next communication.
Love you buddy,
Larry
p.s. Glad you got to come home to Indy over the weekened too. Ft. Myers will be special too when you get your break to go back down there.
Phil
ReplyDeleteI hope that you continue making progress. I and Raj both pray for you when we go to our temple. Hopefully when you are fully recovered we will take you both with us to our temple. Best wishes from both of us
Jas