Saturday, May 30, 2009

A perfect day (for me) in Indianapolis

It was one of those days that I was happy to still be walking on planet Earth.
It was a beautiful spring day with cool temperatures and sunny skies.
I played golf in the morning and much to my surprise, I chipped in hole #9 for a birdie. This was my first birdie since discovery of my tumor and it felt mighty good. My final score wasn't great (97) but the beautiful weather and the birdie raised my spirits. I went home, took a shower and dressed for attending a service at our Synagogue (Indianapolis Hebrew Congregation, IHC). It was a special night there with a tribute to our Cantor, Janice Roger for serving our congregation for 30 years. This was also my first night to attend services at IHC since my diagnosis. It was great seeing friends there including our Rabbi, Jon Adland. After services, we went over to Elaine and Bob Sandy for a wonderful home-cooked dinner that we shared with them and Sally and Jeff Seidenstein and the Sandy's son, Steven along with his girlfriend, Courtney. All-in-all, it was a superb day and one that I was happy to feel physically strong enough to enjoy thoroughly.

Saturday, May 23, 2009

Trip to Chicago for Avastin with family and friends









Phil's son David stayed with him this past week while his wife Patty tended to her parents in Ocala, Florida










Phil standing alongside his good friend, Terry Gladman outside the hospital in Chicago.

It was that time again: time to get another dose of Avastin in Chicago but this time in a little different scenario. My loving wife Patty is in Ocala, Florida tending to her ill father and my son, David has been with me for the past week in Indianapolis. On Friday, May 22, David and I flew up from Indy to Chicago on Southwest Airlines to Midway airport. Patty and I had done this before and it simplifies things by making it a one day ordeal. My
daughter Sarah and her husband Thomas watched our puppy, Chaim. Upon arrival at Midway, we took a cab to the University of Chicago hospital. We had some extra time before my scheduled 9:30 AM Avastin infusion was to begin so I called my good friend and flow cytometry colleague, Jule Auger for a 10 minute get-together where she could also meet David. As always, it's great seeing Julie. David and I also ran into the lead nurse on my case, Jean, and I introduced David to her. At 9:30 AM we went up to floor #6 for my infusion. David sat with me for the whole hour while the magic liquid dripped into a vein in my left arm. As before, this went without incident. Finally, at 11:30 AM David and I met up for lunch at the hospital with my good friend from my Ohio State days, Terry Gladman. We were lucky to be able to see Terry as he spends much of his time working for Novartis in Switzerland. Again, we had a fine time talking about new and old events. After an hour or so, David & I got back in a cab for the ride back to Midway Airport. We caught our flight on time and met with Sarah and Thomas at our house in Indianapolis and then went out together for a sushi dinner at Ocean World.
Best wishes to all of my friends and family. Phil Marder

Friday, May 8, 2009

Avastin working for me and others

Avastin working for me and others

We just returned from Chicago after our visit with my oncologist, Dr. Nicholas and getting a new MRI scan and an Avastin treatment.Although I hate getting the MRIs (45 minutes in a small confined area with a loud pulsing noise in the background, I realize that it is necessary to see how and if my tumor is spreading. I had the MRI taken late Thursday (5/7) afternoon. This morning we met with Dr. Nicholas. First of all he pointed out to us that Avastin had just been approved by the FDA for some recurrent GBM disease. See article here after reading this email.http://www.webmd.com/cancer/brain-cancer/news/20090506/fda-oks-avastin-for-glioblastoma
Dr. Nicholas read my MRI from yesterday and put the scan up on the computer for all of us to see. He pointed out that there was a great improvement in the scan compared to the last one I had. He said that there was a definite decrease in tumor "activity" with less swelling and spreading than had been evident before. I guess you could say that there was some shrinkage. Clearly the Avastin is working for me. Patty & I were very encouraged after today's visit.

Thanks again go to Sarah and Thomas for watching Chaim for us during our 2 day trip to Chicago. We go back for another Avastin treatment on May 22nd.

best regards to all of you,
Phil